LMSdr was created in 2006 to bridge the gap between patients and researchers.
- Funds LMS specific research
- Promotes worthy clinical trials
- Advocates for more LMS research
- Collaborates with others to support our mission
- Provides information, education and support for patients
- And is a voice for the LMS community
We are working for the cure!
Olaratumab + Doxorubicin Extends Survival
The addition of adding olaratumab to doxorubicin extends survival one year in patients with advanced soft tissue sarcomas according to results for a phase II trial. This monoclonal antibody is being now tested in a phase III study and has received an FDA Breakthrough Therapy Designation. According to Dr. William Tap, the chief of the sarcoma program at Memorial Sloan Kettering, “It’s a very nontoxic drug.” Researchers are excited to potentially add olaratumab with other chemo agents. See Phase 3 trial
LMS Blood Drive Update
The LMS blood drive has been a success with over 167 samples collected for the circulating DNA research project. This project by Drs. Kristen Ganjoo and Matt van de Rijn at Stanford, hopes to identify when a treatment is working or not, by looking for tumor DNA in the blood. This could potentially help patients long before they get their next CT scan. A second goal is to be able to tell if a uterine fibroid is a leiomyosarcoma tumor with a blood test. Thank you LMS blood donors!
Biomarker for Trebectidin Response
Drs. Suzanne George (Dana Farber) and Matt van de Rijn (Stanford) are trying to identify a biomarker which will predict who will respond to Trabectidin (yondellis.)
Make a donation to LMSdr and receive the 2016 LMS Conference VIDEO of the speakers as our thank you gift. (Suggested donation $50 or more.)
RARE Foundation Alliance
LMSdr is now a member of the RARE Foundation Alliance and attending the RARE Patient Advocacy Summit September 22-23, 2016.
High School Fundraiser
Student Billy Woltz and his band raised $4,453.00 with a benefit concert in honor of their Logan High School teacher Kelley Schaefer Hoellrich in Ohio. Congrats to an awesome group of teens!
LMSdr has been a supporter of the Congress’s 21st Century Cures Initiative and its companion legislation in the Senate. The OPEN ACT, a bipartisan legislation that could double the number of treatments available to rare disease patients, has been left off the list. We are urging advocates to contact their representatives in the House and the Senate to ask that they step-up for rare disease patients and co-sponsor the OPEN ACT.
We are thrilled to announce that Ofir Gabay has joined our board as Treasurer. Ofir is an accounting professional who owns his own business. He lost his mother to LMS in 2015 and wants to help us work to find treatments that will work. Welcome Ofir!
Shop & Donate
Thank you for shopping at Smile.Amazon and designating a percentage of the profit to LMSdr. You raised $430 within the last six months! You can register at Smile.Amazon.com
- May 17th at 7pm EST. Live online seminar, “Treatment of Sarcomas” from John Hopkins Medical Center. Register here
- June 5th at 4–6pm EST Zumbathon Fundraiser at the Jewish Community Center, Bridgewater New Jersey. Contact Susan for more details.
- June 17th Cancer and Careers Conference, NYC. Details
- July 15th LMS Awareness Day during Sarcoma Awareness month! Order ribbons to give out from Heidi.
- September 22–23 Rare Disease Advocate Summit, Huntington Beach, California