Resources

LMSDR does not give individual treatment advice, but offers the following resources for your own pursuit of investigation. We highly recommend joining our LMSdr Facebook group where you will find over 1400 LMS survivors and loved ones, offering much information and support.

 


LMS INFORMATION

 

Leiomyosarcoma Is A Rare Cancer 

LMSeAlerts – a free LMS newsletter

Leiomyosarcoma Lifeline

 


LMS ONLINE DISCUSSION GROUPS 

 

LMSDR Facebook Group
This is a closed group, posts show only to members of this group. When you request to join, the moderators will send you a question to answer before they can approve you. Please check your personal FB mailbox and respond.

ACOR L-M-Sarcoma 

Smart Patients

 


 LOCAL LMS SUPPORT GROUPS

 

California, Los Angeles

California, Sacramento

California, San Francisco Bay Area

ChicaGoGo Girls (men too!)

Chicago North-West 

Colorado, Denver

Connecticut

D.C. Metro  Area LMS “Lady Bugs” Group

Idaho

Minnesota/Western Wisconsin

Massachusetts, Boston – Dana Farber Group

NYC

Ohio, Cincinnati

Ohio, Columbus

Oregon, Portland

Texas, Dallas/Fort Worth

Washington, Vancouver

 


MORE HELP

 

Campaign Againist Morcellation
Advocacy for women with uterine LMS that has been morcellated

Cancer Financial Assistance Coalition
A coalition of organizations to help patients with financial challenges

Connective Tissue Oncology Society (CTOS)
Scientific conferences for sarcoma researchers and doctors

National Leiomyosarcoma Foundation
Promotes awareness, education and funds LMS research

National Patient Travel Center
Finds free air travel and lodging for patients

NCCN – National Comphrehensive Cancer Network
Sarcoma guidelines for oncologists

NCCN – Guidelines for Patients (Soft Tissue Sarcomas)
Simplified explanation of the guidelines for sarcomas

Patient Advocate Foundation
Free legal help for cancer patients & co-pay relief program

Sarcoma Alliance
Offers education, support and financial help for second opinions at a sarcoma center

Sarcoma Foundation of America
Advocates and funds sarcoma research