Scientific Advisory Committee

LMSDR’s Scientific Advisory Committee is a well-rounded group of dedicated volunteers who have extensive knowledge of LMS and expertise in either the medical, pharmaceutical, research or patient support professions.

The Foundation’s Executive Committee appoints the Scientific Advisory Committee members, who serve only in an advisory capacity to the Foundation. At the request of the Executive Director, the Scientific Advisory Committee reviews grant applications and offers to the Board of Trustees their individual recommendations on which grants to award. Committee members may also be called upon to give their advice on other matters when their guidance may be beneficial to aid the Board of Trustees or the Executive Committee in making the best possible decisions.

We are grateful to the members of the Scientific Advisory Committee, all of whom donate their time and talents to our Foundation and mission.

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DEBRA SIMONS | RN, PhD, CNE, CC

Debra Simons is a Registered Nurse who earned a PhD in Leadership. She is a Professor of Nursing, a Thesis Chair, and teaches in undergraduate and graduate nursing programs. Debra’s research interests align with the Institute of Medicine’s (IOM) patient safety mandate for improved inter-professional communication. A Principle Investigator, she is working on several research projects, both quantitative and qualitative measuring self-efficacy, contrasting and combining results from studies related to LMS, as well as the lived experiences of cancer survivorship. Debra is a LMS survivor.

 

 

SARAH SALEM-ROBINSON | PA

Sarah Salem-Robinson is a Stanford trained Physician Assistant with over 11 years of women’s health issues specializing in OB/Gyn/Infertility with a pharmaco-psychiatric background. In the last two years she’s has broadened her experiences working in Reconstructive Plastic Surgery, of which 40% of her patients are breast cancer survivors. With her prior career/background as a Stanford clinical laboratory hematology/oncology scientist, she also has a strong foundation of laboratory/research knowledge that she can bring to the table. An LMS survivor herself, she wishes to contribute her knowledge to better the LMS community with the goal of creating more LMS awareness, finding more effective treatments and a cure to this devastating disease.

 

 

SUZANNE GEORGE | MD

Dana Farber Cancer Institute, Assistant Professor of Medicine – Harvard Medical School.  Clinical Director, Center for Sarcoma and Bone Oncology

 

 

THIERRY JAHAN | MD

University of California – San Francisco. Professor of Medicine. Director, Clinical Services, Division of Hematology/Oncology

 

PAST COMMITTEE MEMBERS

Meg Thorburn | DVM, MPVM, PhD
Suzan Vrijaldenhoven | MD
Jen Smith | BS, DVM
Amy Rovi | BA

 

IN MEMORIAM

DOREEN KOSSOVE | MSc, MD, DABP


Dr. Doreen Kossove worked in research
and as a practicing pediatrician. She educated and guided patients since 2001 on the ACOR LM-Sarcoma List Group. Dr. Kossove is author of the comprehensive educational website named, Leiomyosarcoma is a Rare Cancer.